Who founded 
?
It was founded by a mother frustrated with the isolation
and lack of information available on these conditions.
Concerned for the future for her son she decided to collect all
medical information, literature and resources. Not content just to
better her son's life she decided to search out other family's, friends
and person's affected by these disorders. Wanting to share experiences
and resources, reach out and help those facing decisions in thier lives
that no one ever expected to have to make. Wanting to give all
information available to parents and help them escape the isolation
she founded HELP.
How does help?
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